Inform, connect and inspire individuals with Down syndrome, their families, and the communities in which they live, through support, education, social experiences and advocacy. Down syndrome is the most common genetic birth anomaly occurring 1 in approximately every 691 births. If your child has Down's syndrome, we can help you find support services in your area. For some, this might mean joining a local support group at church. Santa Cruz Parent Love Connection (SCPLC) : The Santa Cruz Parent Love Connection is a parent run organization which strives to support individuals with Down syndrome as well as individuals with other Special Needs by … The Down Syndrome Clinic at Children’s Health℠ is a specialty clinic designed to provide comprehensive medical care, with a primary focus on behavioral health needs, to children with Down syndrome. Offers public education, advocacy and support to parents of children with Down syndrome including information, outreach programs, social events and financial assistance to parent groups. Monthly support groups, LOL Sensory Friendly Play Club and more. Although they perform a variety of services, nearly all have a parent support component. Suite 202, 1001 1st St SE Calgary, Alberta T2G 5G3. Providing support, resources, advocacy, education and opportunity for individuals with Down syndrome, their families and communities. More Local Support Groups Available. – MD Parents of Children with Down Syndrome (PODS) of Prince George’s County Angels Forever Up Address: PO Box 868, Waldorf, MD 20601 […] LOCAL MARYLAND DOWN SYNDROME SUPPORT GROUPS Down Syndrome Network of Montgomery County, Inc. DSNMC is a non-profit 501(c)(3) organization that provides support to families of children, teens, and adults with Down syndrome who live in Montgomery County. Fasten Your Seatbelt- A Crash Course on Down Syndrome for Brothers and Sisters Skotko, Brian and Susan Levine (Woodbine House, 2009). Support groups and organizations can assist you in making the best decision for your family. Our Mission. Down Syndrome Support Group. I feel that finding other families going through the same thing is one of the most encouraging things you can do. Down Syndrome Ireland helps adults with Down syndrome to learn about their rights as citizens of Ireland. Here are some notable Down syndrome organizations and support groups for … Please check here for all the current information on COVID-19 and people living with Down syndrome. The Guild offers volunteer support for the Down syndrome clinic at Children’s Medical Center, hospital, home and phone visits with parents of newborns, resources, social gatherings, … Why you should become an advocate. 4355 J Cobb Pkwy., Ste. 1st Saturday of the month 2pm-4pm. These groups support families of individuals with Down syndrome from birth through adulthood. With the support and opportunities available to them today, people with Down syndrome are able to achieve and participate as valued members of the community. Peer support and social groups. We offer friendship, support, advice and essential services. Donate to OVDSSG. CT Down Syndrome Congress is a special interest group that advocates for persons with Down Syndrome and their families. Trisomy 18 or Edwards Syndrome is a genetic disorder. DSAOC’s Support & Networking Groups at the DSAOC Center; 1st Thursday of most months from 7-9 p.m. - Circle of Friends: For NEW & Expectant Parents, as well as parents who have children with Down syndrome of all ages who want to network and socialize with others on a similar journey. Long term impact "A self-advocate speaks up for themself. Seriously, it’s amazing! Meet other local families affected by Down Syndrome for playing, sharing, advising, encouraging, suggesting and supporting. This includes: a professional, woman with TS, or other family members or friend. going to a support group – ask your midwife or health visitor about local support groups ; The Down's Syndrome Association also has a list of support groups: find support groups near you. We have a number of support groups within and outside of our organization. UNO MAS! If you only do one thing on this list of resources, find your local Down syndrome support group first! Please locate your local program in the Community Resource Finder or contact our 24/7 Helpline (800.272.3900) for details. The Down Syndrome Association of Northern Virginia operates a list serve and has an extensive website. All donations are appreciated! The COVID-19/Down Syndrome Q and A has been developed by an impressive national consortium of Down syndrome organizations. Down Syndrome Support. DSAIA is a trade organization that works to support and advance the growth and service capabilities of its member local and regional Down syndrome organizations. Down syndrome is caused by a problem with a baby's chromosomes. Visit the Down Syndrome Association of Northern Virginia website or contact Heather Trammel for additional information at 703-621-7129. Our Mission. Fundraise. The Canadian Down Syndrome Society is a Registered Charitable Organization in Canada Charitable Tax Number 11883 0751 RR 0001 Becoming familiar with Down syndrome is one of the best things you can do. Whether you’re a new or expectant parent, a family of color, father or grandparent of someone with Down syndrome, if you’re looking to connect with others in your shoes, MDSC and our dozens of local support group partners around the state can help. A mental health charity for mothers in Cumbria has teamed up with a support group for parents of children with Down's syndrome. These resources related to Down syndrome are all organized by support groups, made up of parents, who have “been there” and know what new or expecting parents need. Down Syndrome Pregnancy, Inc. is a nonprofit New Jersey corporation that provides information and support to expectant parents preparing for the birth of a baby with Down syndrome. However, in-person meetings are paused due to the COVID-19 pandemic. Your continued support helps us provide fun activities for our Buddies as well as support when it is needed. A team of providers from different disciplines come together to provide a variety of services, often within one visit. However, individuals with Down syndrome can be affected by several additional health conditions. All groups are scheduled in Eastern Standard Time. The National Down Syndrome Congress (NDSC) offers resources of support and information for anyone touched by or seeking to learn about Down syndrome, from the moment of prenatal diagnosis through adulthood. Established in 2009, Footprints, Portsmouth Down Syndrome Support Group, is a parent led registered charity, that offers a warm welcome to children with Down syndrome, their families, carers and friends in the local area. The most common suggestions were that the diagnosis be conveyed in person, that up-to-date printed materials on Down syndrome (DS) be provided, and that mothers be referred to local DS support groups. The Down Syndrome Group Northamptonshire is a local charity that supports families and friends in the community who have a connection to people with Down Syndrome. DSNMC empowers and supports individuals with Down syndrome, their families, and the National Down Syndrome Congress. Join our online network of rockin' mom™ and dads with children with Down syndrome. You can get advice from charities such as: Down's Syndrome Association. For over 25 years, the Aberdeen – City & Shire branch (formally Grampian Branch) has brought together families with connections to Down’s syndrome. Western Suburbs. Call (09) 948 2463 or 0211157699 for more information.Pasifika familiesThe contact for this group is Desiree Chan-Chui. Baby Shower: Celebrating a Baby with Down Syndrome. We view our local partners as equal organizations working on behalf of individuals with Down syndrome, their families, and the professionals involved with their overall welfare. Cornwall Down’s Syndrome Support Group are excited to be selling the popular Going to School Books directly from our website. The Montgomery County Down Syndrome Interest Group of Pennsylvania is a 501(c)(3) nonprofit organization whose mission is to provide support and resources for individuals with Down syndrome and their families in our community. Local Family/Client Support Groups Support groups create a comfortable environment where people can meet, share information and resources with peers and offer each other emotional support. These groups support families of individuals with Down syndrome from birth through adulthood. **No face to face group at the moment due to Covid-19** Down With It!!! Summer Camps East Lancashire Down's Syndrome Support Group. Get connected to local support groups, attend annual conferences, and explore the various opportunities for families to gather! Down Syndrome support group, for families, carers, and individuals with Down syndrome, or with a prenatal diagnosis, living in Croydon. This pathway brings expertise in Down syndrome along with an entire network of people working together. Find a Support Group. MCDSIG seeks to broaden awareness, and gain acceptance and inclusion of people with Down syndrome. SPECIAL PRESENTATIONS and more! It serves to be the conduit of value-driven training, programs, best practices, and support for its members. The first meeting drew parents from Federal Way to Woodinville. Some Down syndrome schools also support other developmental disabilities, such as autism, Asperger’s syndrome, Williams syndrome, and intellectual disabilities. GiGi’s Playhouse Tinley Park 15954 S. Harlem Ave. Tinley Park, IL 60477 708-620-8400. The vision of the ‘Community Groups’ is to provide support, connections, information, and be a resource to families while creating a warm, welcoming, empathetic environment. Promote Best Practices. While local families traditionally gather to honor Global Down Syndrome Day, no event will be held this year due to the COVID-19 pandemic. Information on COVID-19! Funded by the Sylvia Adams Trust, the project aims to extend genetic services to the south Asian community, who are known to have a higher prevalence of the Ehlers-Danlos Syndromes. These groups do not show that you are a member of the group on your Facebook account or page. Down syndrome is a common genetic condition caused by an extra chromosome 21. Learn more: Find a support group Find Down’s Syndrome advice, support and information in your area with details of local get-together s, meetings and events. This program is intended to bring parents and loved ones together to provide support and insight to one another in a safe and comforting environment. Space for these support groups is extremely limited and registration is on a first-come, first-serve basis. Find a Support Group. We are a source of local and general information regarding Down’s Syndrome and hope to raise awareness and understanding of Down’s Syndrome in the local community. DSAMT is a community of parents, grandparents, siblings, physicians, educators, professionals, friends, and self-advocates from 40 counties in Middle Tennessee who celebrate and support individuals with Down Syndrome and their families. NDSC hosts the Ages & Stages Resource Library which offers documents and articles for each age or stage families may be navigating through or toward. Raise Awareness. More frequently, parents who get a diagnosis of Down syndrome receive no information about local support groups and social services, and hear no voices of … Our focus is on creating opportunities for parents and families to network and share information through the Canadian Down Syndrome Conference, foster community groups and resources through out events like Go 21, and providing education through our many publications like our New Parent Package, Educator Package, Mind & … The Happy Mums … These groups can provide you with an excellent forum for sharing your feelings and concerns as a new parent, and an opportunity to learn from the experiences of others who have been in your shoes. MEMBERSHIP Membership with Down Syndrome Alabama provides specialized perks and engagement opportunities for parents, caregivers, and professionals-which makes a truly mutually beneficial relationship! Learning more about Down syndrome can also help ease some of your uncertainty, and support groups are a great place to start gaining knowledge. The group is comprised of over 350 parents, numerous professionals and over 20 advocacy groups statewide. World Down Syndrome Day Event. The Happy Mums … March 21 (3/21) was selected to signify the uniqueness of the triplication (trisomy) of the 21st chromosome which causes Down syndrome. Healthcare Guidelines (Age Specific) NEONATAL DEVELOPMENTAL Discuss Early Intervention Refer for enrollment in local program OTHER Refer to local Down Syndrome parent group or PRO (Parents Reaching Out) for family support The Web 39. Please watch your email or this page for information on being part of the new listings. Regional Committees are strategically located around multiple Parent Support Groups. To raise awareness and understanding of Down's syndrome in the local community. Parents with children who have Down Syndrome have unlimited resources through PODS of PGC. A directory of local support groups can be located through support group association internet resources. Edwards Syndrome can result in characteristic physical abnormalities and significant developmental delays. Adoption Support Group Tel: 04 360 8113; All 4 Down's Syndrome: Weekly support group and monthly meetings for families affected by Down's Syndrome. It is recommended that children with Down syndrome be seen in our general Genetics Clinic within the first three months of life. How you can help. We aim to provide support to new parents and give them opportunities to meet other families living with Down’s Syndrome. The National Down Syndrome Society (NDSS) is the leading human rights organization for all individuals with Down syndrome. Dances. When Do Resource Groups Meet? All of our programs and services are FREE to families. Simi Friday Night Group (English) Meets 1st Friday of the month 7:00 PM – 8:30 PM at Tri-Counties Regional Center in Simi. North Carolina provides services to people with Down syndrome and other disabilities in a variety of ways. Whether you’re a new or expectant parent, a family of color, father or grandparent of someone with Down syndrome, if you’re looking to connect with others in your shoes, MDSC and our dozens of local support group partners around the state can help. Down’s Syndrome Group: A national charity offering help and support for parents raising children with Down’s syndrome, including links to regional support groups. Down’s Syndrome Support Groups. The membership area covers Aberdeen City and Aberdeenshire. I have learned to stand on my own two feet" - Senam, self-advocate, Turkey. Families have open discussions on issues related to raising children with Down syndrome. AXYS maintains a number of affiliated support groups, and physicians are especially encouraged to suggest them to newly diagnosed individuals or their families. Local Down Syndrome Support Groups. Contact Morag on 07808 037 561 or email Morag@dsscotland.org.uk. For over 25 years, the Aberdeen – City & Shire branch (formally Grampian Branch) has brought together families with connections to Down’s syndrome. We support families, carers and anyone else who has an interest in Down's syndrome. Down Syndrome Group of Volusia, downsyndrome21@gmail.com Early Stage Dementia Program, therapeutic, social activity program in Edgewater, 386-253-4700, ext 204 Essential Tremor Support Group, Support for people with ET, the families, caregivers and friends, 386-761-6509, 888-387-3867, essentialtremor.org ***THE DSAMT APP! The programs it offers are intended to promote the inclusion of individuals with Down syndrome in their greater community, as well as, to offer support and information to families, caregivers, educators, employers… All support groups will be hosted via phone or video conference for the time being. Site provides information general information about Down syndrome, parent and support group resources, latest in research and medical, and positive messaging, and information on Buddy Walks around the world. Some partners are large operations and some are small neighborhood groups. Additionally, the National Down Syndrome Society lists affiliate members, including local support groups, on their Local Support web page. Throughout Northern California and Northern Nevada, we hold support groups for caregivers and for individuals with younger-onset and early-stage Alzheimer's. Become a Member About Membership DSA has several options for membership, and all include the following: -Incentives and discounts during the Membership Drive – Lifetime Memberships … Call 02218322578 or email for more information. TSSUS can connect you with local resource groups, which are located throughout the U.S. Available on the App Store and Google Play***. Down Syndrome Support. Our team identifies a variety of resources for families, including community programs and local support groups for parents and children. Cornwall Down’s Syndrome Support Group are excited to be selling the popular Going to School Books directly from our website. This ABLEize section highlights Down’s syndrome support groups throughout the UK for your information and to assist parents and carers of Down’s syndrome children. This is a huge amount of work and we know a lot of it was in people’s own time - it is an incredible achievement in such a short space of time. Welcome to the Chichester Down Syndrome Support Group. Support Groups. Some level of intellectual disability is the only feature common to all people who have Down syndrome. Down’s syndrome support group services: supporting communication, speech and language Many local Down’s syndrome support groups offer social and learning activities for children and young people. It is our hope that this information will help us get through this health challenge. TV Down Syndrome Association was established to ensure that persons with Down syndrome achieve their highest potential by:*providing an outreach and support to new parents. AmazonSmile is the same Amazon you know. Box 831 Tinley Park, IL 60477 info@downinthesouthland.org. Click a state to get a list of known Down syndrome organizations for that state: Alabama Alaska Arizona Arkansas California Colorado Connecticut Delaware District of Columbia Florida Georgia Guam Hawaii Idaho Illinois Indiana Iowa Kansas Kentucky Louisiana Maine Maryland Massachusetts Michigan Minnesota Mississippi Missouri Montana Nebraska Nevada New Hampshire New Jersey New Mexico … But most people with Down syndrome have 47 chromosomes. Find Asperger's Syndrome Support Groups in Jacksonville, Duval County, Florida, get help from a Jacksonville Asperger's Syndrome Group, or Asperger's Syndrome Counseling Groups. Holiday Parties. In addition to the benefits received by individuals and Parent Support Groups, Regional Committees have leaders that help plan larger events in your area, such as: Picnics. Uses a question and answer format to address questions from teens who have a sibling with Down syndrome… World Down Syndrome Day (WDSD) is an annual March 21 celebration and global awareness day officially observed by the United Nations since 2012. Down syndrome is a common genetic condition caused by an extra chromosome 21. NDSS envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations, and become valued members of welcoming communities. If you haven’t received an email, please get in touch with our Local Groups and Outreach Liaison, Shani Weber. Phone: 865-202-8867 Email for more information. The Arc external icon The Arc website provides information to help children and families with Autism, Down syndrome, Fetal Alcohol Syndrome, and many other intellectual and developmental disabilities. For more information about existing support groups in your area, contact Holly Zipperer at hzipperer@dsa-gc.org. So we thought we'd celebrate all the ways the Support Group helps our families stay connected. These groups can be typically be easily found by a quick web-search or by asking local hospitals and physicians familiar with Down Syndrome. These groups are targeted to a specific age or part of the Down Syndrome journey to ensure the content is relevant and relatable for all attendees. In addition we promote training and support for all who work with our children. Information in this Question and Answer (Q&A) document can be used to help you support your loved one with Down syndrome. Other Local Area Support Groups… Finding a local support group should be one of your first priorities! In addition to the benefits received by individuals and Parent Support Groups, Regional Committees have leaders that help plan larger events in your area, such as: Picnics. Normally, a person has 46 chromosomes. 4. The Down Syndrome Clinic at Emory, directed by Dr. Amy Talboy, is the clinical arm of Emory’s Down Syndrome program which includes physicians, nurses, genetic counselors, scientists, researchers and other staff devoted to improving the health and lives of people with Down syndrome. The York Down Syndrome Support Group is a parent led group, supporting families in and around York, whose worlds are enlivened by having a family member who has Down Syndrome. Down's syndrome is a lifelong condition, but most people will lead fulfilling lives if they have access to good healthcare, developmental support such as speech therapy and physiotherapy, and support from other parents and kids with the condition. A comprehensive support group directory is a crucial part of reaching that goal. Your child is like every other child in many ways. We also provide services to schools, health professionals and other professionals who want to learn more about Down syndrome. CDSS Support for Families of Children with Down Syndrome. We wish to see our children and adults with Down syndrome live fulfilling, empowered lives and strive to … The Down Syndrome Federation provides a range of supports and services for people with Down syndrome, their families and supporters. The Ohio Valley Down Syndrome Support Group . ... Highlighting the abilities of people with Down Syndrome . Down syndrome and special education. Small Fundraisers. Down’s Syndrome Awareness Week 15th – 21st March The Down's Syndrome Association's theme for Awareness Week this year is "connect". Please share your thoughts about the resources we’ve shared and let us know if you have found other resources helpful for new parents so that we can share those as well! Resource group meetings vary depending on the group leader and group member availability. DSDN creates support systems through private online communities and helps new and expectant moms find local resources and support groups. Open Doors Now 3125 … Monthly social meetings held the first Friday of each month. Our social events offer family support and an opportunity for children with Down's syndrome and siblings to make friends. Mom’s & Dad’s: For parents of children with developmental disabilities focusing on nurturing and supporting families, encouraging positive strategies in dealing with challenges, and sharing in the joy of raising children. All support groups are facilitated by trained individuals. Speak to a charity. Because support groups change frequently, please call the contact number to check on times, location and frequency of the groups meetings. The overall aim of the group is to create and develop necessary provisions which will enable our children to … Some level of intellectual disability is the only feature common to all people who have Down syndrome. Join Down Syndrome groups Related topics: Parents of Children with Down Syndrome DSAG is an affiliate of the National Down Syndrome Society and the National Down Syndrome Congress Parent to Parent of New York State. The following organizations have information about support groups. Tourette's Action. Same products, same prices, same service.… Down Syndrome Support 2328 E. Lincoln Highway, Suite 210 New Lenox, IL 60451 815-272-1068. Emirati launches Down Syndrome support group Brother’s plight prompts 24-year-old to raise awareness about congenital disorder Published: March 28, … Canadian Down Syndrome Society. Down in the Southland P.O. Autism Support Groups in Specific States. • Support groups for a variety of communities. A mental health charity for mothers in Cumbria has teamed up with a support group for parents of children with Down's syndrome. Both Lily and Juan were very involved with a local organization that provided support groups and awareness events in the community. The programs it offers are intended to promote the inclusion of individuals with Down syndrome in their greater community, as well as, to offer support and information to families, caregivers, educators, employers… Beyond research, there are lots of support groups – both online and in-person – that can help you on your journey caring for a child with Down syndrome. Down syndrome is a lifelong condition. The Happy Mums … Resources. For a person with Down syndrome self-advocacy is about developing their skills, knowledge and self-confidence to be able to engage with people effectively, take part in work or social situations, and understand their rights and responsibilities as citizens. The Rio Grande Down Syndrome Network is a nonprofit organization whose mission is to empower individuals with Down syndrome and their families through advocacy, education and support.We are a collaborative network which seeks to create awareness, assure inclusion, and promote independence in individuals with Down syndrome. Breaking down Barriers is a project EDS UK have been working on since January 2017. We promote awareness, acceptance, and inclusion of individuals with Down syndrome. Family outings include playdates, social clubs, sibling support, mom’s nights out, educational and therapeutic-based activities. The membership area covers Aberdeen City and Aberdeenshire. Our pregnancy group is an online support network for Mothers with a prenatal diagnosis of Trisomy 21 (Down syndrome), who are choosing to continue their pregnancy.
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